Round and Round

Stan and I started cooking about November last year, and someone turned the heat up over the past few months. We can't seem to settle into a new normal or find any type of routine that makes sense. The frustration has been we keep hearing "You guys are doing everything right", but if we were, we wouldn't be almost cooked from our perseptive. With that being said, the last time we came out of the hospital and at the recommendation of our most awesome home heath guys, we started the pathway to using some type of Hospice/Pallative care services. We intially had a referral to Horizons Pallative Care last week, which generated a referral to Hospice. As of last Friday, we were admitted into the Hospice program and are in the begining stages of trying to figure out what our newest normal looks like. With Hospice, we pick up a coordination of services that we haven't been able to accomplish. No matter how we yell, call, research, beg, or dance, we haven't been able to pull all of the pieces that keep us at home into any type of focused care plan. For me to open up a can on someone, it takes a long time to get me to that point. (Same with Stan). I am not sure if it is a side effect of the disease or a different expectation of care with Nana because we are her voice. So, as of Monday, here we are with some familar players. Nana's nurse was Mom's nurse. Yet another kit is in the fridge. FedEx is making regular deliveries and we are trying to move our house around yet again to figure out the best way to get all of the equipment in place.