Friday, April 18, 2008

Your joy is your sorrow unmasked.

Mom had a good day. Wendy and I spent most of the day working on Mom's room. We are finished painting. We have another good day before this is finished.

Mom's meds continue to get more complex. I have lists and more lists but I am still worried that I am missing something. Maybe as I get used to this, it will be easier. Right now, what Mom takes is pretty fluid and is changing day to day as we try to fine tune what works best. The goal is comfort and that Mom is awake. This is harder than it sounds. I have a new spiral notebook that I write down everything (and I mean everything).

We had a round of hospice nurses here this morning to watch Mom's port access change. This wasn't as bad as it sounded. Our nurse is named Julie and she is absolutely wonderful. The volunteer coordinator was able to find someone to hang out with Mom for a couple of Zach's ball games. I haven't made any games this year. I can't tell you how wonderful this is. [Finding people to sit with Mom is harder now. Between the meds and making sure Mom is comfortable and making sure the person is okay with sitting with Mom. - There are new rules right now, but that is a different post. I can say the rules with out crying, but it is a little harder to put them in writing. ]

Wendy came bearing tons of gifts. Thanks to everyone for the Ensure and the sheets. As soon as Mom is back on her feed (I need to remember to tell her that I wrote this. ), she will be chugging this stuff down. Today, Mom didn't eat much because of how her tummy was feeling, but no throw ups. (Yeah!)

Thanks to Gayla for dinner. Food has been the last thing on my mind this week. Church is the only way my guys have gotten fed.

Wendy is coming back up Saturday with Grandma, and Uncle Richard is coming Sunday. I think Joanne is stopping by Sunday afternoon, but not sure.

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